Living with Dementia

For the most part, no one knows what it is like. While people will argue that, they do not understand or realize that we don't have a family of our ow or a job that we had to give up. There are care givers who have families from whom they get no support, I understand. Kind of like taking care of that person by yourself, but as for me and my sister, it is a lot different. I am extremely tired of people telling me hey have been there. No, they have not. This is what we have in common:

There spouse, parent or someone close to them has Alzheimer.

They have seen what it does to the patient.

They miss their former parent as we do.

BUT...

They didn't live with them all their lives.

They had moved out long before it happened.

They were working and had to quit.

They have a family

I may not know what it is like having a family and a job wile trying to take care of your loved one, but being a full time caregiver is a lot different from watching them for a few hours and providing transportation while someone else take care of them so you can take care of your own family and be active in ministries. It is a lot worst 

My sister leaves me to take care of my mom for almost four hours in the morning. I have to show her how to use her walker and sometimes bring it to her. (Not all patients use walkers). I have to help her dress and prepare breakfast for her while my sister is at her internship job. I am stuck here with insanity. She didn't have to step down from choir because I lay down my life for her to continue to sing in choir,

So tell m again, how we are a like. DID YOU...

get a chance to move out of your parents house?

have your own car?

have a job?

take care of your loved one while someone else can work or complete schooling?

I am not blaming you for my predicament, but until you actually bee i my shoes, I doubt you understand or know what it is like.

My sister and I found out that dad abused our mother emotionally, She never received healing. We believe this disease happened because of that. Do't know what your loved one went through but it makes sense to us,

Also her fear of Abandonment is because all through her life people she loved died on her: her parents (whens he was three), her brother, uncle and much later her husband. We are all she has and now her fear has come full circle on us. Don't tell me all patients don't like to be aloe or are afraid, Don't tell me we have to live with a disease that comes from the author of confusion, God never said we should accept a disease. The problem with this disease is the patient will never ask God to heal her or him. A patient with cancer can, if they ave faith, but with dementia, they think nothing is wrong.

What is left for her to do? She has lived out most her life. All that is left is for us to move out. If only we could put her in a home, but we can't afford it so we are hoping we will get a caregiver to help us.